A huge relief, super happy but tinged with a bit of sadness. I think that sums up my feelings when I found out that Bam was going to be issued an EHCP. My boy will have the support to spread his wings and fly! (hence the photo) I had a few moments before Mops finishedContinue reading “We will be issued an EHCP!”
Category Archives: epilepsy
BAM’S LOVELY LIFE !!! ;)
I’m very proud and honoured to have a very special guest blogger write for me – My son, Bam. You inspire me every single day. Bam, over to you…. I have ADHD and epilepsy so I don’t always do that well in school, but fortunately for me I have two lovely teachers and one lovely LSA. Even if I haveContinue reading “BAM’S LOVELY LIFE !!! ;)”
Bam is 10!
Warning to pregnant Mummas – contains detail of a difficult birth Wow, how does a decade go so fast….Bam is 10 today and I’m looking back wondering how we arrived at today so quickly! This morning he said to me ‘ Mum, you can have a glass of wine tonight. I’m impressed you have keptContinue reading “Bam is 10!”
You didn’t glance back?
Dearest Bam, I know you didn’t glance back today after I kissed you goodbye. Why would you? You were full to the brim with excitement for your residential trip with the school. Chatting to your mates about Pokémon cards and which activities you were going to do. I heard you say ‘I’m going to do everything!’Continue reading “You didn’t glance back?”
When your child is diagnosed with epilepsy.
At the point of diagnosis Bam was having about 10 seizures a day. He would suddenly lose consciousness and fall to the floor. We would then have that agonising few second wait (which felt like much longer) for Bam to come back to us. It’s really scary seeing your child unconscious, not knowing how longContinue reading “When your child is diagnosed with epilepsy.”
Life in the fast lane…
I’ve been reflecting recently on the family life that Mops, my youngest boy, is part of. Life is very chaotic, loud and active. For him life has always been like that so I wonder if he actually realises his life might be ever so slightly different to his friends in the classroom? He knows all aboutContinue reading “Life in the fast lane…”
Change of heart
Recently Bam made a big decision…he decided to tell his class about his epilepsy. Previously he was adamant that he didn’t want his friends to know, he didn’t want people to think he was different. (see earlier blog post) So why the change of heart? I think it was down to our attendance at the YoungContinue reading “Change of heart”
When Bam asked if he could go on the school residential the response in my head was ‘no way are you ever leaving Mum, ever’ What I actually said was ‘well, let’s look into it’ So that’s what we did. We spoke to the school about whether they would be happy to manage Bam’s epilepsy and ADHD whileContinue reading “Going away..”
We think Bam’s seizures are back. I’m saying we think because it’s not the drop down seizures, it’s the focal seizures, the ones where he zones out for 30 seconds several times a day… So we have been back to see the consultant…she has referred us for another EEG. This time though it’s an ambulatoryContinue reading “My inspiration”
A time for reflection
It’s on its way…. we’re all starting to turn our focus to Christmas. It’s such a magical time but also a time we find ourselves taking a moment to reflect on the past year. I would like to thank Young Epilepsy for their support. They have supported lots of young people with epilepsy this yearContinue reading “A time for reflection”