Very proud to be a Young Epilepsy Guest Blogger! Fab charity supporting parents and young people with epilepsy
The summer holidays have officially landed in our house….I love having my boys at home, sharing precious moments that will become fond memories when they (and indeed I) are older.
However, when Bam is home, it means 24/7 entertainment. OK, so I’m exaggerating, he does sleep, but only for about 7 of those hours….How do you keep a child with attention deficit entertained in the holidays? Any tips that don’t require me burning out would be appreciated!?
After one day of the holidays which included a trip to the theatre, the park, swimming and dentist, I’m feeling tired….but he’s got more energy than ever….the thought of 6 weeks off from school creating additional excitement.
Hmmm, might need to take a week off work in September to recover!
Tonight I’m preparing for battle or at least that’s how it feels. Any parent understands that sometimes you have to go into battle for your child. In whatever shape or form that takes, it’s inevitable that it WILL happen. I’m a fairly quiet person that tends to put other people’s happiness before my own therefore avoiding confrontation (not always the best approach but a difficult habit to change). So when I need to confront an issue for my child I find it hard but it doesn’t put me off…
Having a child with special needs means I have quite a few battles to fight. From being persistent when trying to get hold of a doctor to speaking to the school about the support he needs. Tomorrow is the latter – I am attending a meeting with the school nurse and two other members of staff to discuss Bam’s progress.
Why does it feel like a battle? I think it’s because nobody knows him like I do – I know that boy inside out. Everyone else sees a slightly different side to him making it really difficult for us to reach a mutual agreement on the support he needs. So it’s up to me to make sure he gets what he needs so he can be the best that he can be…..Tomorrow let the force be with me……